Hello to you all,
I know I left you all with bad news the last time but we can not dwell on that. Natalia is home with us and that is truly the best medicine for us all.
The change in her has been incredible. From the time we got home late at on Friday the 11th to now, we have 2 very different little girls. The girl on Friday was tired, weak, drooling and close to the edge. The Natalia today is vital, loving, fiesty and ready to conquer. She has enjoyed having many visitors this past week and has glowed with each visit. We had a nurse from Valley Children's Home Care visit us Monday to teach us how to us the feeding tube and pump. I learned how to put it in and set the pump so she could get enough nourishment to keep going...Edgar woke up to check her at 3 am and found her nose bleeding and formula coming out. We stopped the feed and called the nurse. They told us that it was probably reflux due to her tummy being full and it was causing irritation in her nose. Her tummy was full because she ate and drank like a champ all day Monday. Tuesday afternoon she took the tube out of her nose again. We made her a deal...keep eating and drinking like she had been the past few days we would leave the tube out otherwise straight back in with the tube. I am very happy to report that she is eating and drinking more today then she was on Tuesday.
We also had 2 more wonderful people enter our lives...Shelly and Lori from Make-A-Wish. They our Natalia's wish grantors. They came Monday night to ask Natalia what she wanted most in the world to do...she said go to the beach. Tuesday Shelly called to say Make-A-Wish would be granting her wish and they are sending us to Cancun on the 31st July. They even helped us rush all of our passports.
Yesterday, we took family portraits at Milne Photography. They turned out incredible. His studio is off on Cedar and Nees and those of you in this area need to check out his work. The portraits he has showing in his studio and books are brilliant. Today is the benefit at the Elbow Room. Natalia is strong enough to really enjoy seeing everyone. Should be a blast.
I will write all about our adventures in the next blog. We are doing some fun stuff for the memory books.
Love to you all,
Roni
