Edgar and Natalia headed up to San Francisco on Thursday for her check up with Nuerosurgery and regular clinic & chemo. The shunt is doing good and she is healing well from the surgery. Everything looks good. Thank the Lord! We can see it by looking at her but it's better when the doctors agree. Dr Banerjee wants Edgar and I to discuss putting in a permanent port. Many of you have asked us whether she has one and are surprised that she doesn't when she gets as much chemo and blood draws...well come to find out Dr Banerjee has not brought it up with us before because the doctors did not believe that Natalia would be doing as well as she is right now. With the grace of God and her new chemo Natalia is kicking her prognosis in the B-U-T-T.
Today we made it to Sunday school. Both girls are in new classes and they were glowing from the excitement of being back. We have almost made it several times over the last few weeks but Natalia stops us before going out the door because she hasn't felt up to it. The desire to go was there but her little body wouldn't let her make that step out the doorway. Today we not only made it to class but after her nap we made it over to her godmother's new home. Wow! Out twice in one day...of course she was wiped out when we got home but she managed to take her shower and stay up through the new Hannah Montana episode.
We also have begun to decrease the steriod dose. 1 mg every few days until we reach 2 mgs a day. We are currently down to 4mgs a day and I don't see any side effects but...so prayers from all that she does well this time with the decrease. We made it all the way to 0mgs for 3 days the last time before she hit the wall.
Love to you all,
Roni
3 comments:
it was good to see you guys at church today, im sorry i didnt say hi to you i didnt get to say hi to natalia either as people were crowded around asking her how she was doing, i didnt want to overwhelm her. i did however say hi to sophia and she grinned from ear to ear when she saw me. im glad to hear that natalia is getting better.
Beki
We are so glad to hear Natalia is doing so well. She's always in our prayers. Our miracle girl!
If she wants, Ashlee would love to come visit with her, even if it's just a short stay or a movie. Call me anytime! We miss both the girls smiling faces.
Love,
Laura Goyette and Ashlee
Hey Roni, Edgar, Natalia & Pia! Hope you guys are doing good and getting ready for the Holidays! Glad to hear that Natalia is doing good now after her surgery! I always think about her and how she is doing and I come to this website to find out thanks for keeping us all posted on her condition! Tell her that I said "HELLO" and hope she gets better soon....and of course tell "PIA" I said "HELLO" too! Hopefully she still remembers me LOL! Well if you guys ever need anything let us know we will do what we can for you! Happy Holidays!!!! Also have a wonderful Thanksgiving!!!! Take Care & God Bless!!!!
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