Edgar and Natalia spent the afternoon seeing Dr Haas-Kogen for radiation and discussing how Natalia was progressing. So far they are only saying that the pictures they take every Monday look good. But that could mean anything. We are encourged by the fact that she wanted to take Natalia down to only one dose of dexamethasone a day. Edgar said no to that. Natalia is just beginning to feel confident walking and doing things for herself again. If the steriod is cut now then maybe the symptoms could become more pronounced and she would lose the ground she has gained. So they will wait another week before cutting it to once a day. They are very good at including the parents in the care program.
Next up was Dr Banerjee. We have not seen her since the first week of radiation. She also thought Natalia was doing well. She has ordered a CT scan for the 19th to see if the tumor might be effecting other areas. This is good for us because we might get a better feel on how the radiation and chemo is working. Then she went up to do her regular Monday blood work. Nurse Lizzie called Edgar and told him the results of the blood work looked "wonderful".
They have all received their Natalia's Friends bracelets and wear them with pride. I am beginning to see them all around town. It's hard to miss that bright lime green. I feel a gaint hug every time I see one. Thanks so much Weldon Elementary Parents Club you made that happen.
Love to you all and remember God is there waiting to help you...you just need to take the first step and ask for it.
Love, Roni
Tuesday, June 10, 2008
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2 comments:
Where can we get Natalia's Friends bracelets? I ;have several people here in Wilton and Sacrament that want one.
Diane & Gene Harl
We look forward to hearing how her tests look from the 19th. God is BIG and loves His children! We were blessed by your update and our prayers continue each day.
If you have anymore left, the Herring kids would also love to have a Natalia's Friends bracelets!!
THUMBS WAY UP NATALIA!!!!! It sounds like you are winning over the hearts of the doctors and nurses :). Way to go...you are doing GREAT and we are so proud of you!
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