Hello All,
As many of you may know we are at UCSF for Natlia's evaluation. It is with a heavy heart that I must tell you that the tumor has grown and spread to her brain stem. We are spending the night in the hospital where they have inserted a feeding tube because she lost another kilo in the past 10 days and is having difficulty swallowing. The MRI she had today showed that the tumor has grown since the last MRI 10 days ago. She will undergo a new chemo tonight. It will be administered by IV and will have to be done once every 2 weeks. This will only slow the growth down some not stop or contain it.
Funny how small Fresno can be at times...Edgar called John Herring (his liaison officer) with the news. John was in Diane Dyer's (detective w/ Fresno PD) office. Turns out she is good friends with Shelly, Natalia's wish grantor for the Make a Wish Foundation, she called Shelly. Shelly called me before I could even called Mom back to ask her to go over to my house to find Shelly's phone number. We would like to take Natalia to Cancun so she can enjoy the ocean. The ocean has always been her peace. She spent the first 5 months of her existence in my tummy aboard the Ocean Princess. She asked several times just before she was diagnosed to go to the beach. It is time to give her a beach and ocean place that she can truely enjoy. Cancun has always been special to Edgar's family and now it will be to us.
God has more need of her in Heaven then we do here on earth. She a special angel to all who know her and now she will be able to serve more in need. He is just giving us a little more time to make memories and say goodbye before he calls her home. Please do not think we have given up hope for a miracle or will just roll over. We just want her time here to be as special as we can make it. Please do not look at her and feel pity. She is a warrior without equal who has fought the good fight. She is a 6 year old girl who united a community as well as people across this land with a common purpose. She has shown many people to look outside their own problems and see into the lives of others in need. She has lived her life with compassion, joy and humilty. She is someone I admired above all others.
Much love to you all,
Roni
4 comments:
I there a way we can donate directly to Make a Wish in Fresno in Natalia's name?
Diane HArl
My prayers are all around everyone. I feel like I know everyone so well only through the painful reports and treatments. Now I know some joy in the fact she will see the ocean and smell the salt air and feel the foam around her feet. She has been a brave little girl with a lot of love around her and mircles still happen. God bless everyone and keep praying. God is with her here and will be always. Love Lorraine Romanko
Elk Grove CA
~*~Roni~*~
I love how you are so brave with this whole situation which you have to be as a mother, I pray for Natalia and your family during this difficult time. I want to see Natalia and Pia again I haven't seen them in awhile I only live a few apartments down. If you ever need anything Roni let us know....
Joanna & Brooks :)
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