Saturday, October 18, 2008

What's going on?














Hello All,


Natalia is still trying to get over her cold. She starts off good in the morning but by 11am is wheezing and coughing again. As long as she gets a nap in the afternoon, she is usually ok in the early evening. She has a tough time trying to cough so it is hard to get the flem out of her lungs. Edgar and I spent a sleepless Wednesday night as she tried to get it all out. We kept in contact with UCSF (tells you how bad it was) through the night and managed to keep her out of the ER. About 4am she coughed up a mucus plug and she drifted peacefully off to sleep. She has watched a lot of movies over the last several days, as she is not allowed out until this cold gets under control. Her new fav is Indiana Jones and the Crystal Skull. We watched it for a slumber party (I figured she would last 20 minutes then want to sleep) and she made it through the whole movie and wanted to chat about it afterward. Indy is truely a hero for the ages.


We are preparing for our next UCSF visit this upcoming Tuesday. They will do the spinal tap, chemo and ultra sound this visit. While it is kind of frightning because it just is, I can't wait for the news to see if they are going to have to do the shunt or not. She has reached a plateau and just can not get any better.

I finally included the sites for Family House and the Central Valley Make A Wish. If anyone would like to make donations to these wonderful organizations please check out the web sites. These organizations have helped make a huge difference in our lives.

Talk to you all soon,

Roni


1 comment:

Lauren Marie said...

Hi Roni! Just wanted to let you guys know I'm thinking of you and you're all in my thoughts and prayers. Take care and give Natalia a big hug from me!