Goodmorning everyone,
I'm sorry that most of you had to wait for news but we had to process everything. Natalia's tumor is a stage 3 Anaplystic Astrocytoma. It's cancer. We are in for a long road of treatment and trying new things. But as they say DRs say the worst and expect the best. We do not know much about the treatment phase yet because we were not hearing much yesterday after "it's cancer, and we can't make it go away." The worst means we only have a year or two left with her. The worst means that the tumor will never go away just be held at bay for a time. I've said the worst but I refuse to let go of the best. The best is miracles happen everyday and new treatment methods are out there.
Dr Banerjee would like to speak with Edgar and I without the girls to distract us to go over what steps we need to take for treatment. As I said Edgar and I were not processing much yesterday. Currently we are planning to head back to Fresno today. We want to come back, just us, to speak with her and find out what our next and future steps will be. She would like Natalia to take part in a study with a new chemo drug that has been effective in adults for making the radiation work better. We would need to wait several weeks because there is one course in session right now and we need to wait for that to complete. We know they are getting us an appointment with the radio-onogolgist but they said that probably won't be until next week.
Natalia was pretty tired last night but I know she feels the vibes going on. I know Momma and Papa crying all over her yesterday didn't help. Cara, the social worker here, is going to get us registered with different organizations. But again I wasn't processing much so we need to call her to find out what's up.
Much love to you and please keep praying,
Roni
Wednesday, May 7, 2008
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