This has been a hard 2 weeks...Natalia has been in a lot of pain and has lost quiet a bit of strength. She can no longer walk or even stand on her own and when she lies down it is very hard for her to get comfortable. There has been a lot of crying in our house. After 5 days of solid bed rest her little muscles in her legs have tightened up and that is our culprit. Thank God for the physical therapy evaluation on Friday. I was beginning to think the MRI was wrong. Natalia will finally start PT next week and get all those muscles back into shape.
Natalia got measured for her new wheelchair last Thursday. We made the decision to buy her chair rather then rent because it would be custom fit and easier for her to use. It is going to be kid sized...pink and black with a gel seat, longer brakes and stroller bars. It also has a "grow kit" which means it can grow as she grows. We have seen how much the borrowed wheelchair has helped her mobility and we are told that the custom fit wheelchair will allow HER to be able to move more.
BLOOD WORK LOOKS "GREAT"! Edgar and Natalia head back up to UCSF on Tuesday for Natalia's 1st chemo in 2 month's. Go chemo Go fight that tumor.
Oompaalumpa #10...for any of you who would like to see the FABULOUS SOPHIA in her very 1st role. The Chocolate Factory will be taking place on February 28th at 1pm and 4pm and March 1st at 1pm and 3:30pm at the Fresno Auditorium Theater...ie the Veteran's Center in downtown Fresno. Tickets are $11 at the door. She welcomes all supportors as she is shy...well for the 1st few minutes anyway.
Much love to you all,
Roni
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Praying very hard everyday for Natalia and all of you.
Jennie
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