Monday it was back to the Family House on 2nd and Irving right across the street from the hospital. This makes it very convenient for us to go back and forth. Sophia and I walked to our favorite Italian restaurant Pasquale's to pick up dinner. It was so beautiful, we only had on light sweaters. Then at 615AM Tuesday,Natalia and I walked across the street and checked in for surgery. Sophia was still asleep and it best for the rest of the world to let her wake up naturally. Natalia likes the hospital because "everyone is so nice to me." The surgery took about 2 hours and then 1 hour in recovery. Then it was up to 7 Long. Our regular floor, great nursing staff and very quiet. She was very sore from the surgery but otherwise pretty well. She has some bruising where they ran the catheter and inserted the port. The only bad thing is her asthma was irritated by the breathing tube so our pediatrician at home has put her on a nebulizer. She was released Wednesday afternoon and of course we sprinted for Fresno.
Huge shout out to our pediatritian, Dr. Cesar Vasquez, of Fresno Childrens Medical Group. He is very proactive with treatments. As our journey has progressed we have learned how wonderful he truely is. The stories many parents of children with brain tumors tell is very different from ours...they had to fight their doctors to get that intial CT Scan to see if anything was wrong with their child's brain, we were sent immediately to Valley Childrens to get one after he did a nuerological exam. When we learned just what type of tumor Natalia had and what they (UCSF) were going to do to treat her, Dr. Vasquez called St. Judes to see if they would offer an alternate treatment. Instead of increasing puffs and seeing if that helps stop the weezing and coughing, gave her a nuebilizer(like an air pump that turns liquid medicine into vapor with a mask attached) to get more medicine into her quicker and controls her asthma for several hours.
More later...time for her medicine...
Much love,
Roni
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